12 Pages
2968 Words
Introduction: Nursing Patient Scenario
The purpose of this assessment is to critically analyse the key elements that are impacting the health and well-being of a 5-year-old male primary school student diagnosed with Cystic fibrosis. The primary focus of this assessment will be to highlight how this chronic condition can affect an individual's daily livelihood, both physically and socially, and how it can influence the educational experiences of the patient. According to the case scenario and therapeutic research, Cystic Fibrosis impacts digestive and respiratory functions, necessitating early detection and treatment, including airway clearance techniques, nebulized medication, and pancreatic enzyme replacement therapy (Girón Moreno et al., 2021). This assessment will include three topics of discussion, where, the first topic will include the analyses of components associated with Wagner’s Chronic Care Model and its potential benefits for managing chronic illness like CF. Topic 2 will discuss the role of nurses within interprofessional teams in terms of enabling the patient to self-managing health and wellness, whereas topic 3 will include the SMART goal for the healthcare management and treatment plan for the 5-year-old student who is suffering from chronic illness, like Cystic fibrosis. Therefore, the aim of this assessment is to develop an insight into improving the care strategies and support mechanisms for children with chronic illnesses like CF.
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Topic 1: Two specific components of Wagner’s Chronic Care Model and potential benefits for managing CF
The CCM or Chronic Care Model of Wagner identified the essential elements of a health care system, that encourages high-quality chronic disease care. these elements include the community, the health system, self-management support, delivery system design, decision support and clinical information system (Ansari et al., 2021).
(Figure: Wagner’s Chronic Care Model)
(Source: ACT Centre, 2024)
Component 1:
Self-Management Support: this element of Wagner’s Chronic Care Model signifies the empowerment, and preparing the patient to manage their health and well-being. This element states that in the healthcare system, the patient with chronic illness should be encouraged to set achievable goals, identify the potential barriers and develop skills to monitor their health conditions (Grudniewicz et al., 2023). Considering the case scenario, for the child with cystic fibrosis, this component can be adapted to support both the child and his family as they grow older (Floch et al., 2020). The potential benefits of these elements for 5-year-old school students with CF can be defined by the empowerment of parents and caregivers. For that particular child, his family, and immediate caregiver play the most important role in managing his condition, self-management support can include training and resource management techniques for the parents to better understand the CF and its management process (Schulman-Green et al., 2020). This may include the process of educating the parents about airway clearance techniques, the administration of nebulizers and other medication interventions. Empowering the caregivers can be beneficial as they can better adhere to the treatment plans, and make informed decisions about the child’s health and wellbeing (Zuurmond et al., 2020). Additionally, this element can also help the child to adhere the self-management skills for his chronic illness. As the child grows, they can gradually take on the responsibility to manage their health. Introducing age-appropriate self-management strategies, such as making the child understand the importance of medication and timely administration for reducing the risk of CF can foster a sense of self-control and responsibility within that child.
Component 2:
Delivery System Design: this element or component of the Chronic Care Model refers to assuring effective, efficient care and self-management support, this component states that a regular, and proactively planned healthcare system, that incorporates the patient goal can help an individual to maintain optimal health and allow the health system to better manage their resources (Dowd et al., 2021). More specifically, this component of the Chronic Care Model refers to the provision of comprehensive, coordinated, and continuous care to the patient.
The potential benefits of this component can be defined in the case study in such a way that the management of chronic illnesses like cystic fibrosis requires a multidisciplinary approach which includes the association of respiratory therapists, dietitians, pulmonologists, and other healthcare professionals (Mall et al., 2020). Delivery system design emphasises the importance of a coordinated care team whose role in the healthcare system is to maintain communication with the patient, share information, and patient-centric care to ensure the health, and well-being of the individual. For the young child with cystic fibrosis, this component facilitates the coordinated working approach in the healthcare system for managing various aspects of the conditions from nutritional support to respiratory care (Bell et al., 2020). This coordination can foster effective treatment plans and better patient outcomes. Additionally, considering the risks related to Cystic fibrosis, and its impact on a child’s health and wellbeing, continuity of care is essential. Delivery system design can promote regular monitoring and follow-up appointments to track the child’s progress and adjustment of the treatment plan, as per essentiality. This can help to maintain consistency in care, reduce the risk of complications and ensure quick recovery of the patient.
As a whole, Wagner’s Chronic Care Model has provided an important insight for managing chronic illnesses like Cystic fibrosis in young children. By focusing on self-management support, and delivery system design, caregivers and healthcare providers can enhance the overall quality of health and livelihood of the child with CF, by improving the treatment plan, and providing coordinated, and continuous care in the healthcare design system.
Topic 2: Two key elements of the nurse’s role within an interprofessional team
For managing chronic illness, primary care is the first and continuous point of contact in the healthcare system. In recent care models, nurses try to encourage patients with chronic illnesses to participate in their own treatment and care plan by increasing their health literacy and carrying out self-management (Barr et al., 2017). Considering the case scenario of a 5-year-old student with cystic fibrosis, the role of a nurse in an interprofessional team will be to support both the child and his family. In the current healthcare system, effective self-management is considered to be important for managing the risk or complications of chronic illness like Cystic fibrosis which needs a complex treatment regimen to improve the quality of health and well-being of the patient.
This analysis will include two key elements of a nurse’s role within the interprofessional team: Education and Support for Family and Caregivers and coordination and Communication with the interprofessional team.
Education and support to the family:
It is an important element of a nurse’s role, particularly when it comes to managing chronic conditions like Cystic fibrosis in young children. In a multidisciplinary care approach, where the patient and his family will be considered an important part of the treatment plan, the nurse must plan a training program (Griffin, 2019). The education involves demonstrating how to use airway clearance techniques, administrating nebulizing medications to provide better health outcomes and managing the potential risks of CF for the children. The nurse must tailor the education to the family level to make them understand and provide them with written materials and resources as references to manage the health and well-being of the patient by themselves. This education can empower the family to manage the child’s health condition and reduce the likelihood of treatment non-adherence due to lack of knowledge (Lines et al., 2017).
Additionally, another important role of the nurse in this specific aspect will be to promote self-management skills. As the child grows, the nurse can try to involve the patient in the care process, so that the child at his developmental age can take proper care of himself and manage the risk of Chronic disorder (Catarino et al., 2021). This includes the explanation about the purpose of treatment by the nurse to the child and encourages them to take part in their care processes. Developing this self-management skill can facilitate the development of a sense of responsibility and independence, which improves the treatment adherence, and overall well-being of the child with CF.
Coordination and communication with the interprofessional team:
Coordination and communication with the interprofessional team is another key element of a nurse’s role when it comes to offering comprehensive and cohesive care to a child suffering from a chronic illness like cystic fibrosis. Here, the nurse can act as a bridge between the patient, family, and various healthcare professionals involved in the care and treatment of the child with CF. The key action in this role of the nurses will be:
- Facilitating team collaboration: in the interprofessional team, the nurse will coordinate with multidisciplinary teams including dietitians, respiratory therapists, pulmonologists and other healthcare specialists to provide cohesive and patient-centric treatment (Schimith et al., 2021). This includes organising regular team meetings, reviewing the progress of the child, and making adjustments to the treatment plan as necessary. Effective coordination can ensure that every aspect of child care, starting from respiratory management to nutritional management is integrated and aligned with the overall healthcare plan for Cystic fibrosis.
- Ensuring continuity of care: in the interprofessional team for managing a chronic illness like CF, continuity of care is considered as an important role for the nurses. On the other way, it can be stated that a nurse in the interprofessional team should be responsible for monitoring the child’s condition regularly, sharing information with the patient and family before the intervention of the treatment plan, and communicating updates to the interprofessional team (Santos et al., 2022). This ongoing communication can help in preventing gaps in care and ensure patient outcomes.
In summary, in reference to the case study, the role of a nurse is to enable the self-management of the chronic condition for the young patient by providing comprehensive education and maintaining coordination with the multidisciplinary team within the healthcare system. By focusing on these key elements, the nurse can enhance the family, and the child’s ability to manage his health condition and ensure the adherence to treatment regimen through an integrated and continuous care process.
Topic 3: SMART goals
Based on the case scenario of a 5-year-old student with Cystic Fibrosis, the patient-directed SMART goal for managing his condition and enhancing his quality of life will be:
Goals
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Specific
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Measurable
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Achievable
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Relevant
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Time-bound
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Improve School Attendance
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Increase the school attendance rate from 50 per cent to 70 per cent for the child with cystic fibrosis
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Attendance record will show a 20 per cent improvement
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Adjust the health management plan for reducing the absence rate and coordination with the school administration
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Better academic progress and increased social integration
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By the end of the current academic year
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Increase and improve social interaction
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Increase the participation rate of at least one organized social activity per month by the child with CF
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One social activity per month
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Encourage the child to take part in suitable activities
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Helps the child to combat social isolation and improve quality of life
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6 months
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Justification of the goals and role of the nurse:
Regular school attendance is important for ensuring the educational and social development and growth of the child. On the other hand, frequent absences from school may hinder academic attainment and can limit the opportunities for social interaction with peers and career development for a child with cystic fibrosis (Grieve et al., 2011). Therefore, this goal can help the child to stay engaged with his learning environment and build relationships with educators, and classmates by avoiding the possible complications related to Cystic fibrosis. Additionally, an increase in school attendance can provide a consistent routine to the child, which can be beneficial for him to manage his condition. A stable routine can help the child to manage the symptoms, and risks related to cystic fibrosis and can help in creating a sense of normalcy for the children (Grossoehme et al., 2014). To fulfil this goal the role of a nurse will be to collaborate with the child and his healthcare team, parents, and school administration to develop a health management plan that can minimize his absence rate due to complications related to cystic fibrosis. Here, another role of the nurse will be to maintain communication and monitor the health progress of the child including his school attendance patterns, communication patterns with peers, and possible barriers that hinder his attendance rate. Addressing these issues can help the nurse to develop a treatment plan by focusing on the child and making necessary adjustments in the treatment process to increase the educational development of the child.
On the other hand, increasing social interaction is another important goal for the child with CF as it can ensure his emotional, and psychological well-being (Prieur et al., 2021). Additionally, encouraging the child to get engaged in social activities and interactions can improve his quality of life, providing him with a sense of normalcy and enjoyment. This goal can also support his mental health development and help the child to be connected with society. To fulfil this goal, the role of a nurse will be to provide guidance to the family on how to introduce the child to social activities, considering his health needs (U.S. Department of Education, 2021). For example, nurses can offer strategies to manage the symptoms of CF and suggest ways to communicate his condition with other parents. It can help the child to cope with his condition, overcome the stigma and develop a social bond with his surroundings. This as a whole can ensure overall health outcomes and social and educational development of the child with CF.
Conclusion
To conclude this assessment, it can be stated that, this assessment has critically analysed the impact of chronic illnesses like Cystic fibrosis on the health and overall well-being of a 5-year-old child. In this assessment, the management of this chronic illness has been discussed by using Wagner’s Chronic Care Model, where the focus has been given to self-management support and delivery system design as key elements for managing the chronic illness of the child. Apart from that, in this assessment, the discussion on the nurse’s role including education and supporting families and coordinating with multidisciplinary teams have been discussed to manage the health condition and reduce the risk of cystic fibrosis for the child. Lastly, a patient-centric SMART goal has been set up, where the focus has solely given to increasing the school attendance rate, and social interaction for the child with CF.
References
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